Desmond's first few weeks

I have to tell even when I was pregnant with Desmond I new there was something so Wonderful Happening inside of my belly something I have never felt before. I have 3 other sons and of course they are so special in there own way and I Love Them all more than life, But from the Moment Desmond left the comfort of my womb I new that he was going to need so much extra Care and Love. I had never felt that before I was completly overwheilmed with this filling of Happy-ness  Sadness and so much Love I couldn't believe how Beautiful he was and he never even made a sound I keep him every night in the hospital room with me and it was kind of scary he never really cried but I shure did. I sat up just watching  him and Praying that he grow up and be healthy little boy I don't why I felt I had to ask for these things I never did before I allways just new that my other boys where fine and never felt the worry that I felt with Desmond. I took him Home and I treated him with so much care and was allways right there by his side because still he never really cried and I started noticing other things to he never seemed to move or kick his legs and at first I thought maybe he is just slow or really tired from his long journey into this world his breathing was different to but My doctor said at 2 weeks he looked fine and so of course I took him home and continued to monitor everything I started telling neighbors I was scared there was something wrong and told them how the doctor said everything looked fine but I new I could fill there was something not right but what??????????

Celebration of Life and The Sadness of A of a Death

Well Let me tell You we had a lot of Fun on Desmond's 6month Birthday Party. We opened Presents and we had Pizza and we had candles and he was Smiling so Big to See everyone Sing Happy Birthday to him, He Loved it. We Let him Play in His chocolate Cupcake and he got all messy I took video So as soon as I learn how to put that stuff up I will Put it up for u all to see. After are Celebration of my Sweet Desmond's 6months of  Life, we got some very Sad news Are Dear Sweet Jonas Coleman 3years old had died the night before from The Progressing Disease Spinal Muscular Atrophy Type 1 just like my Sweet Baby Desmond. Jonas Dad Whit works out at Primary Children with research team for Spinal Muscular Atrophy and he has been such a great support for me and my heart Breaks for him and his Dear Wife Lindsay who is a Great Insperation to me Just Knowing she has Dealt with all the same Heart aches Helps me to relate to her. Whit and Lindsay Just had a darling little Baby Girl who all so Has Spinal Muscular Atrophy and my Heart Aches so bad for them right now. To View his Obituary go to the salt lake tribune website. I think thats why it took me a few days to get back on here it really Hits Home to Hear about stuff like that. I am Not ready to let go! I can only Pray that My sweet Desmond will make it as long as Brave Little Jonas! Hopefully I will Get more Pictures up and get some video up soon! thanks for stopping by!!

He Must Be Gathering His Strength back!!

Today was such a great day Desmond was in such a Great mood all day, He was Laughing and Cooing all day............. So Sweet!! He only took one nap all day for about an hour thats why I say he must be gathering his strength back after His last Hospital stay for Pneumonia and a cold, he all so recently had a little bit of a sinus infection that was causing his eyes to be red and goopie but we got an antibiotic and it is doing much better.Desmond all so had his Occupational Therapy Today for the first time sence his last hospital stay and he did Great. Desmond just had his R.S.V shot too and 2marrow he gets his six month shots and his flu shots. Speaking of Six Months Today we Had some one Ding-Dong Ditch Are door and when We opened it There was a Big Box there with Balloons and the box said Happy 6Month Birthday Desmond He is Six Months 2marrow and the box has toys and cloths and party hats and Cake mix I am so Excited Now with The Mystery Persons help we are going to have a Birthday Bash for my Little Angel Lots of Pictures and Pizza and Birthday Candles!! Thank You Thank You Mystery Person Desmond and His Brothers Are very Excited!! I am Really Looking forward to doing this Blog it is exciting to me I am going to start doing Blogs about how this all came about and the fillings and trials we have ran into threw out this difficult time I am going to do them in parts starting with part 1 the begining I hope it is easy for u all to follow I am going to do my Best. Thank You For stopping By Today and we Look forward to are adventure together!!!

Hello Everyone

I am Desmonds Mother Tasha I have started this Blog to keep everyone who is interested in knowing about my sweet Angel Desmond He has a condition called Spinal muscular Atrophy. Threw out this blog I would Love to answer questions and hear all your thoughts to keep us strong. I want to tell are story and I want to start from the begining I Will not be able to finish all in one day of course but I want to start I want everyone to know are Joys and are Heart Breaks. I need to do this as his Mother I am going threw so much right now that I am Affraid I might Lose my way. I Fill I have allready taken a step backwards filling like I am not able to give my child all I fill he deserves and falling in to old bad habits like shoplifting, but dont worry all of this will maybe make some sence once I start telling My Story. But bare with me I am just learning how to do all this stuff and I have 4 kids and one is very demanding in his health care but I will get on everyday at least once and tell a little everyday and Please fill free to comment and give advise because I can use all the advise and comfort I can get. Thank You Very Much and we will get started soon. Tasha